
I Am…in the Middle
This story captures the often-overlooked middle of recovery where progress feels slow and persistence is everything. It honors the physical therapists who walk beside patients in that uncertain space, turning steady effort into renewed strength and hope.
I Am…More Than Liver Cancer
From quiet symptoms to complex treatments, liver cancer patients share stories of resilience. Discover strength in the Smart Patients community.
What I Wish I Had Known About Ovarian Cancer
This story is written in the first person, but it is not the story of one woman alone. It is a composite drawn from the voices of many Smart Patients members who have shared what they wish they had known about ovarian cancer. Their collective wisdom offers guidance, honesty, and hope for anyone beginning this journey.
Vacation? I Choose Home!
For Alzheimer’s Awareness and Healthy Aging Month, Smart Patients is lifting up the voices of caregivers. This story reflects the reality many face: vacations and outings often bring more stress than relief, while home becomes a place of comfort, safety, and small joys. Through laughter, shared memories, and listening to one another, caregivers in our community are redefining what rest and connection mean.
When Patients Speak Up, Hospitals Get Safer
To be part of the patient safety team, it just takes ordinary courage, bringing a notebook, asking the names of the people caring for you, thanking them, and then asking your next question. And if something doesn’t look right, say so kindly at first, more insistently if you must. In the language of safety science, that’s called a “good catch.” In the language of the families who have learned how much it matters, it’s called love.
Hope Grows Stronger When We Share It
These words aren’t just one person’s alone - they’re stitched together from the stories, questions, and hard-won lessons shared by many people in the Smart Patients multiple myeloma community. What follows is not one person’s journey but a chorus of voices. Their honesty is sometimes raw, often practical, and always rooted in hope.
I Am…One of Many Men
For Prostate Cancer Awareness Month, Smart Patients is sharing the voices of men living with prostate cancer. This collective story reflects the shared struggles and strengths of the community—from the uncertainty of diagnosis, to the impact of side effects, to the search for answers and hope in new treatments. Most of all, it’s about connection: men finding strength, confidence, and solace by listening to and supporting one another.
When Dementia Distorts Reality, Love Bends With It
Caring for a loved one with dementia means navigating shifting realities with patience, creativity, and love. In the Smart Patients community, caregivers share hard-earned wisdom on when to step into your loved one’s world instead of correcting them—whether that’s going along with a mistaken memory, offering gentle reassurance, or finding small ways to bring calm. This post explores how dementia caregiving challenges identity, tests resilience, and underscores the need for practical support, breaks, and self-preservation.
Is It Possible to Be Too Accommodating? Living (and Laughing) with Parkinson’s Caregiving
Caregiving for someone with Parkinson’s means balancing love, patience, and exhaustion—often in the middle of the night. From midnight showers to 3 a.m. cleanups, caregivers walk the line between ‘too much’ and ‘not enough.’ In the Smart Patients community, they share the small victories, hard truths, and creative strategies that keep them going—and remind each other they’re not alone.
The Art of Identifying (Scientific) Misinformation
In today’s digital world, health misinformation spreads faster than ever—often disguised as scientific fact. The Art of Identifying (Scientific) Misinformation explores how to recognize false health claims, understand the emotional tactics behind them, and navigate online content with a critical eye. As patients, caregivers, and advocates, we must learn to ask the right questions and seek trusted sources. At Smart Patients, a peer-to-peer health community, members support each other in separating fact from fiction. Join us to become a more informed advocate for your health, armed with real experiences and evidence-based insights. Your curiosity is your best defense.
Curiosity Saved the Cat
When Bill was diagnosed with papillary renal cell carcinoma (pRCC)—a rare type of kidney cancer—he didn’t just follow the standard path. He asked questions, analyzed data, and became a powerful self-advocate.
From seeking second opinions to organizing an AI-powered health hackathon, Bill’s journey shows how patient empowerment and curiosity can change lives. Today, he’s a trusted voice in the Smart Patients kidney cancer community, helping others facing rare diagnoses.
When Hope Has No Borders
Discover how international medical collaboration bridges critical healthcare gaps for pediatric sarcoma patients, providing life-changing second opinions regardless of geography or resources. Learn why patient advocacy networks represent the future of rare disease treatment in 2025 and beyond.
One Registry, Countless Voices: Rethinking Autoimmune Data Together
Discover how Smart Patients and the Autoimmune Registry are reimagining autoimmune research with patient voices at the center of innovation and care.
Fifteen Years with Kidney Cancer: Turning Fog and Fear into Advocacy
Glenn's 15-year kidney cancer journey transformed from "super dark days" to powerful advocacy through online community support. His story shows how Smart Patients connects kidney cancer patients and caregivers with practical advice, hope, and the confidence to become stronger self-advocates in their treatment decisions.
Kidney Cancer Community: How Peer Support Changes Patient Journeys
Discover how the Smart Patients kidney cancer community helps patients find strength, practical wisdom, and hope through shared experiences and peer support. Beyond medicine, community matters.
Gastric Cancer Treatment: New Developments and Clinical Trials in 2025
Discover the latest gastric cancer treatment options, from surgical innovations to promising clinical trials like MATTERHORN and KUNLUN. Learn about symptoms, early detection, and quality of life after gastrectomy.
How Hope, Community, and a Single Comment Saved One Man's Life
When doctors gave Don Jackson "zero hope" after his stage 4 cancer diagnosis, he refused to surrender. Instead, a single comment in an online patient community led him to a medical test that would later save his life. Seven years later, at nearly 90 years old, Don isn't just surviving—he's thriving and inspiring others. His story reminds us that hope persists even in the darkest moments, that medical miracles do happen, and that sometimes, the most life-changing connections come from unexpected places. Don's journey shows us that in our interconnected world, we're never truly alone in our health struggles, and a simple act of sharing knowledge can ripple outward to save a life.
Living with Dysautonomia: Understanding the Condition That’s Hard to Explain but Impossible to Ignore
Learn how dysautonomia symptoms affect the body's 'autopilot' functions. New brain imaging research explains post-exertional fatigue, brain fog, and POTS syndrome symptoms.
Understanding Functional Cancer Testing: A New Approach to Treatment Selection
We learned how functional cancer testing measures live cancer cell responses to treatments, potentially saving precious time in finding effective therapies.
A Notebook and a Question
Navigating gynecologic cancer care can be overwhelming, but you don’t have to do it alone. In partnership with our Smart Patients community and Clinical Care Options, we’re excited to introduce a new tool: the Guide to Working with Your Gynecologic Cancer Care Team. This patient-driven guide is here to help you understand your options, ask the right questions, and make decisions that feel right for you. With insights for both patients and healthcare providers, it’s a step toward more personalized, equitable care for everyone facing a gynecologic cancer diagnosis.