Chris Carneal Chris Carneal

I Am…Rescued by Music

Discover how music becomes more than sound, how it transforms into memory, comfort, and connection for people navigating illness and loss. In this second movement of I Am...Rescued by Music, community members share how melodies outlast names, lyrics anchor what fades, and songs become bridges between who we were and who we are now.

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Chris Carneal Chris Carneal

Every Six Months, Another Scope: Patients and Experts Frame Life with FAP

Ask the Expert (ATE) sessions surface uncertainties that drive patient anxiety, inconsistent care decisions, and underutilization of evidence-based practices in rare diseases like FAP. When experts clarify these issues, patients shift from fear-driven behavior to informed, proactive decision-making. This ATE closes knowledge gaps and reveals unmet needs, barriers to guideline adoption, and opportunities to design interventions that align more closely with patient behavior and lived experience.

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Chris Carneal Chris Carneal

I Am…Rescued by Music

It started with a walk that almost didn’t happen. One perfectly timed song later, this Smart Patients’ community began sharing the music that helps them get through the day. We’re telling this story in four movements, like a concerto with different parts.

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Chris Carneal Chris Carneal

I Am…Grateful for You

I Am…Grateful for You reflects on what truly matters in an online patient community—meaningful conversations, shared experience, and peer support that helps patients and caregivers navigate diagnosis, treatment, and uncertainty together. Through powerful member quotes, this end-of-year story shows how Smart Patients creates a trusted, supportive space where people feel heard, informed, and less alone.

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Chris Carneal Chris Carneal

I Am…Building a Courageous Community 

Two fathers turned the experience of caring for a child into lifelong missions to support families facing pediatric alopecia and childhood cancer. This story explores how nonprofit leadership and peer-to-peer communities like Smart Patients help parents and children navigate fear, uncertainty, and treatment decisions together.

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Chris Carneal Chris Carneal

The Making of a Podcast: Behind the Mic With Smart Patients

Ever wonder what it’s really like to record your first podcast? Hear from three Smart Patients community members who did just that—and shared every surprise, tech hiccup, and empowering moment behind the mic. Get inspired and explore our community-built podcasting toolkit.

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Chris Carneal Chris Carneal

I Am…Finding Delight

Even during illness, uncertainty, and the heaviness of the holiday season, moments of joy still emerge. In this Smart Patients community story, members share how small, everyday delights—nature, connection, laughter, and gratitude—help them cope with chronic illness and serious health conditions. Together, these shared moments remind us that we are more than our diagnoses, and that joy can still find us, one small moment at a time.

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Chris Carneal Chris Carneal

Understanding Pancreatic Cancer Together: Patients Talk About What Matters

Smart Patients and the Pancreatic Cancer Action Network hosted an Ask the Expert session with Dr. Efrat Dotan, GI Medical Oncologist at Penn Medicine during Pancreatic Cancer Awareness Month. Participants opened up about the symptoms that get missed, the genetic risks families don’t hear about soon enough, and the treatment decisions that keep them up at night.

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Chris Carneal Chris Carneal

I Am…Living One December at a Time

For Crohn’s & Colitis Awareness Week, we’re sharing a firsthand story from someone who has lived with Crohn’s disease for more than 30 years—highlighting the physical, emotional, and dietary challenges that December can bring.

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Chris Carneal Chris Carneal

I Am…Trying To Live Normally with GERD

GERD and acid reflux often peak during the holidays, when heavier meals and disrupted routines can trigger painful flare-ups. In this Smart Patients story, community members share what GERD really feels like and what helps.

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Chris Carneal Chris Carneal

Invisible Patients: What Caregivers Wish the World Understood

Unpaid caregivers shoulder staggering physical, emotional, and financial burdens that often go unseen — yet they are essential to patient health and outcomes. Smart Patients surveyed nearly 300 caregivers to hear from them what they want the world to understand. This summary presents their data, their words, and how they link to evidence-based research.

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Chris Carneal Chris Carneal

I Am…22 to 89: Generations Facing Stomach Cancer Together

Stomach cancer affects patients from ages 22 to 89, and this story explores how people across generations navigate symptoms, treatment decisions, and daily life after diagnosis. Drawing on real Smart Patients conversations and data from ASCO 2025, it highlights emerging therapies and hope for gastric cancer care.

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Chris Carneal Chris Carneal

Antibiotics: A Shared Responsibility

In honor of Antibiotic Awareness Week, this story examines how repeated UTIs, long-term bladder issues, and multiple antibiotic courses pushed one patient into antibiotic resistance. This is why understanding antimicrobial resistance and everyday stewardship practices is essential for anyone navigating chronic infections.

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Chris Carneal Chris Carneal

I Am… Choosing When to Act

A Smart Patients’ question—“Should I have surgery now or wait?”—sparked an insightful discussions in the pancreatic neuroendocrine tumor (pNET) community. This story, shared for World Neuroendocrine Cancer Day, explores how patients navigate uncertainty, timing, and treatment choices for this rare form of pancreatic cancer.

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Chris Carneal Chris Carneal

I Am…Blindsided by a Whole New Disease 

After successful cancer treatment, an unexpected diabetes diagnosis left one patient searching for answers and support. In the Smart Patients Diabetes Community, they found understanding, practical advice, and hope.

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Chris Carneal Chris Carneal

I Am…Learning to Say the Right Words

Not sure what to say to someone in hospice? You’re not alone. In this Smart Patients story, I Am…Learning to Say the Right Words, members share compassionate ways to offer comfort. Published in honor of Hospice and Palliative Care Month, this piece explores how presence, gratitude, and quiet love can mean more than perfect words.

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Chris Carneal Chris Carneal

I Am…Inhaling and Exhaling

Drawn from real Smart Patients conversations, this story shows how community wisdom, small tips, and words of encouragement can become part of the process of learning to inhale, exhale, and heal together through uncertainty.

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