I Am…Rescued by Music
Discover how music becomes more than sound, how it transforms into memory, comfort, and connection for people navigating illness and loss. In this second movement of I Am...Rescued by Music, community members share how melodies outlast names, lyrics anchor what fades, and songs become bridges between who we were and who we are now.
Every Six Months, Another Scope: Patients and Experts Frame Life with FAP
Ask the Expert (ATE) sessions surface uncertainties that drive patient anxiety, inconsistent care decisions, and underutilization of evidence-based practices in rare diseases like FAP. When experts clarify these issues, patients shift from fear-driven behavior to informed, proactive decision-making. This ATE closes knowledge gaps and reveals unmet needs, barriers to guideline adoption, and opportunities to design interventions that align more closely with patient behavior and lived experience.
I Am…Rescued by Music
It started with a walk that almost didn’t happen. One perfectly timed song later, this Smart Patients’ community began sharing the music that helps them get through the day. We’re telling this story in four movements, like a concerto with different parts.
I Am…Grateful for You
I Am…Grateful for You reflects on what truly matters in an online patient community—meaningful conversations, shared experience, and peer support that helps patients and caregivers navigate diagnosis, treatment, and uncertainty together. Through powerful member quotes, this end-of-year story shows how Smart Patients creates a trusted, supportive space where people feel heard, informed, and less alone.
Checking In with Don and Ann: Eight Months Later, Good Cheer to End the Year
In this end-of-year update, head and neck cancer survivor Don Jackson and his wife Ann reflect on eight more months of survivorship. Their story shows how community, proactive research, and hope can continue to influence outcomes long after a stage 4 cancer diagnosis.
I Am…Building a Courageous Community
Two fathers turned the experience of caring for a child into lifelong missions to support families facing pediatric alopecia and childhood cancer. This story explores how nonprofit leadership and peer-to-peer communities like Smart Patients help parents and children navigate fear, uncertainty, and treatment decisions together.
The Making of a Podcast: Behind the Mic With Smart Patients
Ever wonder what it’s really like to record your first podcast? Hear from three Smart Patients community members who did just that—and shared every surprise, tech hiccup, and empowering moment behind the mic. Get inspired and explore our community-built podcasting toolkit.
I Am…Finding Delight
Even during illness, uncertainty, and the heaviness of the holiday season, moments of joy still emerge. In this Smart Patients community story, members share how small, everyday delights—nature, connection, laughter, and gratitude—help them cope with chronic illness and serious health conditions. Together, these shared moments remind us that we are more than our diagnoses, and that joy can still find us, one small moment at a time.
Understanding Pancreatic Cancer Together: Patients Talk About What Matters
Smart Patients and the Pancreatic Cancer Action Network hosted an Ask the Expert session with Dr. Efrat Dotan, GI Medical Oncologist at Penn Medicine during Pancreatic Cancer Awareness Month. Participants opened up about the symptoms that get missed, the genetic risks families don’t hear about soon enough, and the treatment decisions that keep them up at night.
I Am…Living One December at a Time
For Crohn’s & Colitis Awareness Week, we’re sharing a firsthand story from someone who has lived with Crohn’s disease for more than 30 years—highlighting the physical, emotional, and dietary challenges that December can bring.
I Am…Trying To Live Normally with GERD
GERD and acid reflux often peak during the holidays, when heavier meals and disrupted routines can trigger painful flare-ups. In this Smart Patients story, community members share what GERD really feels like and what helps.
Invisible Patients: What Caregivers Wish the World Understood
Unpaid caregivers shoulder staggering physical, emotional, and financial burdens that often go unseen — yet they are essential to patient health and outcomes. Smart Patients surveyed nearly 300 caregivers to hear from them what they want the world to understand. This summary presents their data, their words, and how they link to evidence-based research.
I Am…22 to 89: Generations Facing Stomach Cancer Together
Stomach cancer affects patients from ages 22 to 89, and this story explores how people across generations navigate symptoms, treatment decisions, and daily life after diagnosis. Drawing on real Smart Patients conversations and data from ASCO 2025, it highlights emerging therapies and hope for gastric cancer care.
Antibiotics: A Shared Responsibility
In honor of Antibiotic Awareness Week, this story examines how repeated UTIs, long-term bladder issues, and multiple antibiotic courses pushed one patient into antibiotic resistance. This is why understanding antimicrobial resistance and everyday stewardship practices is essential for anyone navigating chronic infections.
I Am… Choosing When to Act
A Smart Patients’ question—“Should I have surgery now or wait?”—sparked an insightful discussions in the pancreatic neuroendocrine tumor (pNET) community. This story, shared for World Neuroendocrine Cancer Day, explores how patients navigate uncertainty, timing, and treatment choices for this rare form of pancreatic cancer.
I Am…Blindsided by a Whole New Disease
After successful cancer treatment, an unexpected diabetes diagnosis left one patient searching for answers and support. In the Smart Patients Diabetes Community, they found understanding, practical advice, and hope.
I Am…Learning to Say the Right Words
Not sure what to say to someone in hospice? You’re not alone. In this Smart Patients story, I Am…Learning to Say the Right Words, members share compassionate ways to offer comfort. Published in honor of Hospice and Palliative Care Month, this piece explores how presence, gratitude, and quiet love can mean more than perfect words.
From Story to Strategy: Bringing Patient Voices into Medical Education
When patients share their lived experience, medical education becomes more than instruction — it becomes insight. This practical guide from Smart Patients shows how to integrate patient voice into continuing education so learning is more human, relevant, and effective.
Beyond Dry Mouth: Understanding Parotid Tumors and Lymphoma Risk in Sjögren’s
A Smart Patients conversation about parotid gland swelling revealed something bigger: the importance of listening to your body — and not settling for “don’t worry.” Here’s what patients and studies agree on about lymphoma risk in Sjögren’s.
I Am…Inhaling and Exhaling
Drawn from real Smart Patients conversations, this story shows how community wisdom, small tips, and words of encouragement can become part of the process of learning to inhale, exhale, and heal together through uncertainty.