Patient Perspectives on Multiple Myeloma
Smart Patients and Clinical Care Options, LLC, are working together on a project about multiple myeloma. We want to help healthcare providers give individualized, evidence-based treatment while addressing health disparities.
Smart Patients has large communities for multiple myeloma patients. We asked them to share their views in an online survey about key challenges and unmet needs they face during treatment. Their answers will provide support for the medical education program of Clinical Care Options, LLC:
Addressing these challenges together with an engaged healthcare team can lead to healthier, richer lives for multiple myeloma patients.
Patient Survey Results
The online patient community conducted a survey that garnered responses from 80 patients with multiple myeloma. This type of survey is valuable as it offers a patient's perspective that is not influenced by healthcare professionals. The survey participants spanned the range of the disease's progression, from earlier to later stages. Most respondents were from suburban areas, and their age distribution was similar to what is observed in clinical practice.
Key Takeaways:
Results of an online survey on treatment preferences revealed that efficacy is the most important factor for patients with multiple myeloma when selecting therapy.
Patients selected CAR T-cell therapy as their first choice, as it had the greatest efficacy with a 1-time administration, albeit coming with the significant challenges of necessary hospitalization, cell collection, and potentially serious adverse events.
Download Resources
Download the resources below to learn more about what matters to patients in making treatment decisions.
HCP and Patient Resource for Treatment Decision
You may find this infographic to be a powerful tool for educating healthcare teams on patient treatment preferences: Understanding Patient Perspective on Multiple Myeloma Treatment.
Patient Preference Survey Tool
Download the Patient Preference Survey Tool to learn more about your patients’ preferences in care decisions (adapted from Rocques publication).
Understanding Patient Perspectives
Download our multiple myeloma survey to gather your own patient perspectives on multiple myeloma treatments.
